Radiation Day 6

January 31st, Mornings are so hard. He gets up around 5 am starving and is so upset when I tell him he has to wait for breakfast. It makes for a really long morning. I talked to the scheduling people but we are as early as the anesthesiologist can get to him. They said we could come earlier (our appointment is at 9:30am, we get there at 9, which I don't know why they want us there so early, we just sit and wait), but there is no guarantee we can start any earlier. Radiation was un-eventful. Although, I was holding Atticus and as we were walking in he said, " (big sigh) NOT AGAIN." I teared up. I wish we didn't have to buddy. I really really do. Eric took him back and when he came to sit down by me he said, "I know what you mean about the new nurse!" So I'm not being that protective. Put a smile on your face woman!! He woke up really fast. Like crazy fast. Wanted to go home, so we did. We hit up good old McDonaldsl where he ate: one bacon egg and cheese mcmuffin, one sausgae egg and cheese mcmuffin, one hashbrown, one orange juice... Immediately followed by a bowl of Trix, a handful of pretzels, and mac and cheese! He's been "sad" the last two days. Low energy, a little whiney, but hanging in there. Such a trooper. The absolutely LOVE each other. Atticus was getting Chunk to make his new face over and over again. He had us all laughing! His baseball team was the Texas Longhorns! He feels super cool in his hat! One of his favorite activities... "cooking!" This little boy is getting bigger by the second. It's crazy. I can't believe he will be ONE next week! UPDATE on how he's doing... He slept in our bed last night and slept pretty decent. We always start with him in his own bed but after his 1-3 am meal he sleeps with us. The decodron makes him sweat so bad. He wakes up sopping wet. Like change the sheets wet. Especially his pillow. Our room is the coolest in the house, so he doesn't sweat as bad, even though its a cozy 3 in a small queen! He always wants our hands to be touching, which I LOVE. He either wants us to hold hands or have my arm across his tummy, or puts his arm on my chest. It's hard to sleep next to him. I want to watch is every breath. The crazy dreams have slowed down a bit. But he seriously has the most intense dreams. We are hoping upon hoping that the decrease in steroids helps him. This week he's down to 4 mg. It's just been the past couple of days that his cheeks have looked really puffy to me! He's got some darn cute chipmunk cheekers. It's even cuter when is smiles. Chuuuubbby! His feet have bouts of edema and look like little sausages at times. He has discovered that he really likes back tummy and foot rubs! He still gets occasional headaches but we have found that if he sleeps with two pillows, his head doesn't bother his as much. He does NOT like laying down flat. He is getting more and more use from the right side of his mouth! HALLELUJAH!! It makes eating and drinking soooo much better. Imagine, you are absolutely starving, go to take a bite, and bite your cheek. Or, you super thirsty, go to take a drink, and it spills down your mouth and chin. It was so frustrating and emotional for all of us, but especially for him. I cannot tell you how many sippy cups we have been through to try and find the right fit. The winner: a sippy with a soft straw attached. Thank you Target! Love, Cindy